Griffin, a Diagnosis, and the Gift of New Eyes

When I tell people about our youngest son’s Down syndrome diagnosis, many people say, “I’m sorry.”

They don’t know what else to say.

But there’s no need to be sorry. He’s alive and well, we love him, and we’re glad he’s here.

And yet, I still understand and appreciate it when someone says, “I’m sorry.” Because even if they have never had a child with Down syndrome—or any other kind of condition that leads to developmental delays—they have some intuition that it’s going to be hard.

We all do, because we have lived in this world.

We all intuitively know that the world is not built for people like Griffin. We know it’s hard to always see doctors, and that some people will treat him badly. His life—and ours—won’t follow the “normal,” well-trodden path and that will, at times, be very hard.

The past eight months have already given me a preview of this tension: between who Griffin is and how the world is built.

Griffin is normal—just somewhere else on the wide bell curve of what life looks like. He was conceived and born as any other child. We made no alterations to him—he’s here as God made him.

Yes, he has a diagnosis. But that doesn’t mean he’s broken. He isn’t defective—he’s simply different. Just like kids with cystic fibrosis, dyslexia, deafness, or any other “diagnosis”—these kids were simply born this way. That is normal, even if different.

And this goes beyond medical diagnoses. Some kids are taller or shorter. Some are gay or straight. Some are different levels of athletic, artistic, or scholarly. All kids are different, on a boundless amount of dimensions.

All of these kids—and all of us as adults—fall into the category of “we were born this way” in one dimension or another. Made by God this way, by no choice of our own.

So there are people just born a certain way, and yet, we also intrinsically know that those same people will have to go through inevitable hardship because of how they were born interacts with the world we live in.

But it’s not all struggle. Robyn often reminds me that some things may actually come easier for Griffin—like kindness, joy, and forgiveness. He has this lightness of being I can’t explain, but I see vividly.

Still, some of the hardship just doesn’t seem right—for Griffin or for anyone else who was “born this way.” Especially the hardship rooted in having their needs overlooked or unconsidered.

Those needs show up everywhere—from schools and playgrounds to healthcare, websites, public parks, airports, road signs, and even neighborhood newsletters. These choices shape whose lives get to flourish.

Because on a planet with over 7 billion people and in a country of over 300 million, there will inevitably be so many differences and spectrums.

Every day, in small and big ways, we make consequential choices about who’s in and who’s left out.

Whose needs are considered and whose aren’t? Do we only build for people like us, or do we stretch to include those we don’t yet understand?

Of course, our lives and our world have trade-offs. There isn’t unlimited time or money. But there are a lot of smart people who care, who have time and a willingness to innovate to break trade-offs. And in many cases, there’s money we’re already spending that could be spent differently. We just have to see with different eyes.

Playgrounds are a good example of this, and something I see with new eyes now. There are ways to make playgrounds so that many different types of kids can play together. You just have to make different and creative choices about materials, structures, and things like seats on swings.

I see so much more clearly now—even if in a very small way—the ways in which people born “normally,” but differently in a particular kind of way, are overlooked because they are easy to ignore, or are less “squeaky” than I am.

And it doesn’t sit right with me. But I do get it. The more people we include, the more complex our decisions are. We have to be smarter and more creative to make a website that everybody can use well enough, compared to just what the majority can use.

But that still doesn’t sit right. I am not God, after all. Why do I get to decide who’s worthy, important, or loud enough to be included? I may not be able to break every trade-off and create some sort of prosperous utopia that works brilliantly and cheaply for everyone. But it doesn’t seem right to me to not even try—before overlooking, whether deliberately or simply because I’ve allowed myself to remain ignorant—the needs of someone in need. Which, aren’t we all, in some way or another?

Griffin’s Down syndrome diagnosis has given me the eyes to see this profound choice—who’s in, who’s out—more clearly. And more importantly, it gave me the eyes to see that I was more ignorant of my own ignorance than I thought I was.

But in addition to a realization about justice, Griffin has also helped me realize something about joy.

I can’t explain it, but Griffin has joy. And his joy honestly feels different. I don’t know why—whether it has to do with Down syndrome, or if I’m blinded by the fact that he’s our last child, or what. But his joy is different in a very special way.

Which is to say, the world would lose something extraordinary if he had never been born—or if his gifts were overlooked and never nurtured.

And not just Griffin. Every child—born “different” or not—has something extraordinary within them. Every adult too. When we overlook entire groups of people, we rob the world of that brilliance.

So, in addition to not being able to accept the injustice of deciding who’s in and who’s out, who am I to rob the world of these extraordinary things? The comfort of my own ignorance is certainly not more valuable than that.

Being Griffin’s father has already humbled me. Seeing the world through his eyes has taught me that I have a long way to grow in two important ways.

First, I ought to stretch whose needs I consider as widely as possible.

Second, I should assume I don’t understand other people’s needs and gifts as well as I think I do.

So instead of “I’m sorry,” after someone shares a tough reality, maybe it’s better to say:

“I honestly don’t understand what you’re going through. How are you all doing?”

Maybe that will open my heart even wider to understand, love, and include them.

Audacious Dreams: The Key to True Inclusivity

Real, genuine inclusion is hard. It demands a level of effort and commitment that can feel daunting. But it’s also essential.

The Tough Reality of True Inclusivity

Creating a truly inclusive culture—whether in a society, a company, a small team, or even a family—in a diverse environment requires a special mindset. We have to believe that everybody matters and has a place if they treat others with respect. More importantly, we have to believe that it’s possible for everybody to matter.

Here’s what I mean by “it’s possible” for everybody to matter. Some situations feel like a prisoners’ dilemma, where not everyone can win. For example, multiple people vying for the same CEO position may see each other as competitors. Only one person can win, so it feels like others must lose.

Or consider children who feel they must be their parents’ favorite to feel secure and loved. This zero-sum mindset leads them to believe that not everyone can matter equally.

People who think this way might believe: We can’t have true inclusivity because there will always be winners and losers. Only winners matter. Everyone mattering is therefore impossible.

Inclusivity is hard because we must overcome this zero-sum mindset—that the world must always have winners and losers—to begin creating an inclusive society, company, or team. We have to believe that it’s even possible for everyone to matter.

Simply saying that everybody matters and it’s possible for everyone to matter can be dismissed as cheap talk. Why should we believe it’s possible for everyone to matter when the zero-sum mindset is so pervasive? A skeptic might say, “prove it.”

And to be fair, examples of true inclusivity are rare and often seem exceptional. How many spaces have you seen where everyone truly mattered? When I think of public examples, I think of the Apollo program, which brought together diverse talents to land people on the moon. Other examples include the Manhattan Project, the Toyota Production System, Microsoft’s transformation under Satya Nadella, and Southwest Airlines in its heyday. But even these examples have flaws and limitations, showing how hard it is to scale inclusivity.

Audacious Dreams

Inclusion is a complex phenomenon that’s hard to explain, but I think a big part of it is dreams. We need audacious dreams.

Inclusion is really hard. To counter the zero-sum mindset, inclusion can't be voluntary. It has to be involuntary, where we have no choice but to put aside our fears and egos and create the gravity that brings everyone in.

Audacious dreams create this gravity and make inclusion emerge. When we have a dream that matters deeply, we do anything to bring people in to achieve it. We look for the superpowers in others to help make the dream come true. With these dreams, we forget how hard it is to build an inclusive culture and just do it because we care about the dream and the mission.

I saw this when I worked at the Detroit Police Department. Many leaders, community members, and staffers—inside and outside of government—had the audacious dream to reduce gun violence in Detroit. This was audacious because for decades, Detroit had been one of the most violent cities in the country, with no data suggesting it would change.

The audacity of this dream brought everyone in. We had no choice but to include people because there was too much work to do. We had to find and involve new funders, community partners, law enforcement agencies, university researchers, and even victims and perpetrators of violence. We had to be inclusive and find ways for everyone to contribute their unique gifts because the dream of reducing violence was so challenging.

I’ve been away from this work for several years, but a lot of good work to reduce gun violence in Detroit has happened in the past decade. Audacious dreams that foster inclusivity are possible.

Guarding Against the Dark Side of Dreams

Audacious dreams create the gravity that helps inclusion emerge involuntarily. We need audacious dreams about “all of us.”

Yet, if contemplated with bad intent, audacious dreams can also be dangerous. There are many examples of people who manipulate others by sharing an audacious dream, recruiting people to help them, and ultimately pursuing an agenda of self-enrichment.

It’s also easy to use audacious dreams to be selectively inclusive—only including a chosen few and excluding others to build in-group unity.

How do we ensure our audacious dreams lead to an inclusive culture instead of a toxic one?

I think how we, as individual dreamers, dream matters. Is our dream one where the final image is of our own personal glory? Or is the final glimpse a better future for everyone? Is the dream about just us as individuals or all of us as a group?

This is hard. I’ve struggled with delusional dreams about my own advancement and personal glory for decades. I try not to be too hard on myself because our culture worships achievement, but it’s true. I’ve had dreams of being inaugurated as a senator or giving a press conference as a CEO. Even after seven-plus years of inner work as I’ve written a book - Character by Choice - which goes deep on the inner work that builds our capacity to be good people, I still relapse into dreams about moments of personal glory instead of dreams about all of us.

But this inner work is worth doing because we desperately need audacious dreams that create the gravity to bring everybody in. We need to leave ourselves no choice but to find ways for everyone to matter. I truly believe that an inclusive culture will lead to a healthier, more prosperous, and greener world in the long run. So we have no choice but to dream audacious dreams.

But like power, audacious dreams can corrupt. If we make them about just us instead of all of us, those dreams can lead to exclusion and exploitation.

We can’t have it both ways. If we want to create an inclusive culture, we have to dream audaciously. But we also have to do the inner work to ensure those dreams aren’t about just us, but about all of us.